Its been almost a year since we last published a post on 2 Bottles of Milk, so where have we been?
Last Christmas I was so ill that I spent most of Christmas Day in bed asleep and it got me thinking about how hectic our lives were and how we needed to relax and let something rest for a while and that was unfortunately the blog! With everything that Leo had gone through and a new baby, as well as life in general it was the easiest thing to let go and allow more time for all the other stuff that was going on at that point.
Continue reading “Where have we been?”
Over the last few months we have written regularly about Leo’s Hearing Loss and his Assessment Process for Cochlear Implants at London’s St Thomas Hospital.
To say that this journey has been emotional is an understatement and it has also been stressful for Leo. It is a journey that has taken longer then we expected, however since we last wrote we have had some huge developments and his journey has moved forward significantly which has been a good yet stressful and emotional time.
Continue reading “Our Cochlear Journey”
In conjunction with Action on Hearing Loss.
In life we all take our hearing for granted assuming that the hearing we have won’t deteriorate as we get older and to be honest we tend to have a habit of abusing our ears to an extent that it can and has caused hearing loss in people of all ages.
Continue reading “Protecting Your Hearing!”
Did you know that in 2015 over 11 million people in the U.K. had a hearing loss of some description, that’s equivalent to 1 in 6 of us and that by 2035 that number is expected to rise to 15.6 million or 1 in 5. That number is just staggering when you actually stop to think about it. In fact most people probably know someone with a hearing loss of some description, either being from natural loss due to old age or someone that was born with a hearing loss.
1 in 6 of the UK population are affected by some form of Hearing Loss
– Action on Hearing : Hearing Matters
Of the 11 million who have a hearing loss around 900,000 people have severe or profound deafness, at least 24,000 of whom use British Sign Language.
People with hearing loss are less likely to be in work and hearing loss often means people having problems finding a job, fulfilling their potential at work and staying in work. This is due to a number of factors, however a major one is employers attitudes towards hearing loss and this needs to change.
In 2013, it is estimated, that the UK economy lost £24.8 billion in potential economic output because too many people with hearing loss are unable to work.
– International Longevity Centre UK, 2013 – Action on Hearing: Hearing Matters.
However change does seem to be happening with advances in hearing aid and assistive technologies, together with new technologies like Speech to Text, barriers do seem to be being broken down in regards to communication for people with hearing loss. Also there is rapid progress being made in the understanding of the biological causes of hearing loss, things such as Genetic Testing and MRI Scans have given better understanding. It is believed that by 2020, with proper investment, treatments for Hearing Loss and tinnitus could be available and that cures could be available within a generation.
For more information on Hearing Loss and Action on Hearings Hearing Matters Study please click here
Today the 15th May marks the start of Deaf Awareness Week 2017, this is a cause close to our hearts in our family due to the fact that both my wife and my youngest son have a Hearing Loss.
Through the course of this week we have some fantastic guest blogs for you to enjoy, updates from our family journey and also some facts and figures from Simon Robb at Action of Hearing.
Our guest bloggers this week are as follows:
Living with EVA: An account of a family living with an EVA (Enlarged Vestibular Aqueducts) diagnosis written by Sarah and her sister Laura.
Sarah blogs at Arthur Wears
Baby Sign: An Experience of Baby Sign Language written by Hollie.
Hollie blogs at Thrifty Mum
Sudden Sensorineural Hearing loss (SSHL): One persons experince of suddenly loosing their hearing later in life. Written by Carly Sygrove.
Carly blogs at My Hearing Loss Story
We hope you enjoy this week, however we also hope you take something away from it as well. Let us know via our social media or in the comments section on each post.
On this day two years ago Leo received his first pair of hearing aids.
Having been diagnosed with a hearing loss during his New Born Hearing Screening Test after they failed to get a result Leo was sent for further testing including a NBR which is a test they do when the child is asleep to see if they can get any feedback on his/her hearing.
Following the tests they did Leo’s audiologist sat down with Keighley and my Mother in Law and explained that he had a hearing loss and that he would need hearing aids. This was around Easter time two years ago.
It’s hard to believe that it’s been two years as so much has happened in that time including an MRI Scan, Genetic Testing and a referral to St Thomas Hospital for Cochlear Implant assessment after Leo had a further hearing loss in December last year.
In those two years we have had times when he has been great wearing his aids, he started off so well and then he figured out that he could remove them and either throw them or in a few cases feed them to the dog. Each and everytime his audiology team have just replaced them and we’ve moved on. We’ve had more molds then I can remember because Leo was growing so quickly as a baby he would need them redone every week.
It’s been a tough journey the last two years and a steep learning curve but it’s also been an amazing one as we have a learnt a lot. We’ve also watched Oliver learn to watch out for his brothers hearing aids as well as his brother when they are out playing. Both the boys have learnt some basic sign language and that is continuing and it’s amazing to see how well they both adapt to the situations we have thrown at us.
I’m gonna leave this Post with the video of Leo getting his hearing aids for the first time and having them switched on. To me it’s still as amazing now as it was then.
I found this image on the Action for Hearing
Loss website. Living with Keighley and experiencing her difficulties either on a daily basis when we watch TV and the subtitles either cut out half way through a show we are watching or the channel that has a show we are interested in just doesn’t even bother with subtitles and also when we go to London and almost all trains now have a announcement when you are approaching a station and Keighley can’t hear it, I feel they have hit these problems on the head and they need to be dealt with. The subtitles on TV are being campaigned about as I type this and a posy I have written on the subject is available here
For more information on Action for Hearing Loss Click here
I found this image on the Action on Hearing
Loss website and thought it would be great to share. The points listed below are so true and will help a person with hearing loss feel so much more at ease when they are interacting in a group situation or one on one.
For more information on their work visit the Action on Hearing
Loss website here